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9.01.2016

5 YEAR BRAIN SURGERY ANNIVERSARY.

It's been 5 YEARS since Cole had surgery...can you believe it!?!  I certainly can't.  Some parts of life seem to never pass by fast enough, and once it does, it almost feels like a DREAM.  We are now struggling with different things...like behavior, potty training, sensory issues and an almost 8 year old that is non-verbal and very aggressive.  The older he gets, the harder it is on him and our family.  But I have to say that he is the BEST thing for our family.  Even my 2 year old takes care of him.  She does "hand-over-hand" therapies with him, she is constantly asking if he's ok...or if he's happy or sad,  when we get frustrated with him...she will immediately put us in our place and tell us "mommy, be nice to my brother, I love him" or  if he's attacking us and we get frustrated because he won't stop she will say "be nice to Coe-Coe, that's the how he plays.  She is his PROTECTER and there are things that she would have NEVER LEARNED if it wasn't for her brother.  He has taught her to never give up & boy is she strong willed...I couldn't have dreamed for a better sibling for either of them...it was LITERALLY a match made in HEAVEN


Since it is his 5 year post op...I have to post his video!


and here's a little update on his NEW All-Inclusive School.  First off, I LOVE LOVE LOVE his new school.  It was a little heart-breaking deciding to send him there, even if it is the BEST place for him. Now that I've morned another "Special Needs Stage" and decision, I know that it is the BEST place for him to be.  They are better equipped  to handle his behavior and rage episodes.  The school is almost like a hospital setting, with the actual hospital directly across the street!  There is a FULL-TIME NURSE and PART TIME NURSE at the school at all times which is WONDERFUL!  At his last school he only had a nurse at school on Fridays!  They have a gym with a TON of adaptive equipment like bicycles for them to ride.  The school is on LOCK-DOWN at all times.  There is an AMAZING Sensory Room with a "water-bed" mat, lights, swings and a gigantic Banana Chair that he LOVES.  We NEED one of those rooms...it's actually REALLY cool.  The play-ground is HUGE, CLEAN and also an Adaptive Playground.  It's only been about 1.5 weeks...but so far he seems to be adjusting well.  OH! And they are "TRYING" to POTTY TRAIN HIM.  Which would obviosly be AMAZING!!!  So wish him LUCK on that one! (for his AND our sake!)

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