UP DATE ON COLES "Break through seizures".
We met with the neurologist last week & had a follow up EEG. It was hard to be back at the Children's Hospital. We basically had a year off from the " Epilepsy world" and it was WONDERFUL. No hospital visits, no procedures: EEG's, MEGscans, MRI's, PETscans, blood work etc. It was a much needed break emotionally, physically & financially. ....I forgot how EXPENSIVE everything is! Anyways, his EEG was similar to the last EEG a year ago...however it showed spiking on BOTH the left & right sides...and ended in the frontal lobe...which is consistent to "head nod seizures we have been seeing. So what's next??? Another med. His Neuro wanted to try Depakote. With Cols track record of having "more" seizures or a "new" seizure type from seizure meds...we decided to hold off on Depakote to try a few other things. Another blogger mom recommend we try Frankincense Oil (I don't have your email to contact you by the way...can you leave it in the comments!) and the Atkins Diet. Remember when Cole was on the Ketogenic Diet when he was 2 & his seizures went from 150+\day to 20/day....I thought since he did so well seizure wise on the diet, maybe the Atkins Diet would help just enough to keep those head nod sz away. So...stay tuned as always! This kiddo always has us on our toes!