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12.10.2014

EPILEPSY AWARENESS.


What does Epilepsy mean to you? ...I'll tell you what it means to me....I've {SEEN & DOCUMENTED} Cole having 75,000 seizures & 3 different seizure types in 2.5 years...in those 2.5 years our insurance paid out around $400,000. This December would have marked Cole's "2 yrs of seizure freedom" which is when we could start weening his medication...in hopes that he would have less {RAGE} & help his life be more bearable for him & us. I thought those days were behind us. I'm a bit speechless & have yet to come to terms that 2 months ago...it slowly started creeping back into our lives. I honestly think I'd be a total wreak right now if it wasn't for our new baby girl! As weird as that might seem, that sweet girl has saved me in more ways then I could ever imagine. We are going back to the drawing board...we have basically tried {EVERYTHING} except one medication that will cost $900 {OUT-OF-POCKET} per month...we are waiting to hear back from the Neurologist. It's fitting that November is Epilepsy Awareness Month. 

I'm just going to end this post with a Quote: "I cannot promise an end to your adversity in this life. I cannot assure you that your trials will seem to you to be only for a moment. One of the characteristics of trials in life is that they seem to make clocks slow down and then appear almost to stop.There are reasons for that. Knowing those reasons may not give much comfort, but it can give you a feeling of patience. Those reasons come from this one fact: in Their perfect love for you, Heavenly Father and the Savior want you fitted to be with Them to live in families forever..." -Henry B. Eyring