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12.16.2012

WHAT'S COLE UP TO?

Cole has been behind on his immunizations ever since he started having "S's".  I finally felt like it was time to start on them again.  He started having "weird seizure like activity" after he got his shot.  Then, we saw a few "head nod" seizures.  Cole is SO sensitive to things...even if we change his vitamins, supplements & meds...SOMETHING happens.  I should have listened to my self and known Cole's history with everything, but I figured since he was doing good, I thought it would be ok.   Moral of the story...ALWAYS listen to your motherly instincts.  We are trying not to freak out.  It makes me sick & I can feel my self starting to slip into a dark place if I'm not careful...I'm trying SO SO SO hard not to do that.  I told my husband the other day that I wish I could just die for Cole...if he could have a better life...I would die for him. But that's not how it's suppose to be.  I love Cole the way he is, but I feel sad that life isn't easier for him. My husband reminded me, that Cole is too perfect & he is being shielded from the filth of the world.  He is also here to help me become the person I am suppose to become.  Can you tell I have a hard time with holidays?...right now, I need to just grab onto my faith & pour my heart & soul into what is really important...and that is...the Lord.  He's the only one that makes "Un-fair" things feel like it will be ok...maybe not today but someday.

Anyways, here's what Cole's been up to:

We decorated our Christmas Tree...yes, it's only 4 feet, but this is how Cole would like it to look like instead!  He thinks it's pretty funny to throw everything off! 
Cole's new toy obsession this week is the Foam "T" in his hand.  His first love has & will always be his lap top.
We can't keep his shoes on...it's been 6 months since he has worn shoes longer then 10 minutes because of his Sensory Processing Disorder.  It is super cold and snowing now...so we had to do something...his babysitter tried to tape his shoes...and it worked!!!  We use the Medical Stretchy Band and it's PERFECT!
We switched Cole's honey that we buy from the store to Raw Honey...and oh my goodness...the taste is amazing!!!  But besides the taste...it's got AMAZING vitamins in it that Cole is in desperate need of:
• Vitamin A
• Beta-Carotene
• All of the B-Complex Vitamins
• Vitamins C, D, E and K
• Minerals magnesium, sulfur, phosphorus, iron, calcium, chlorine, potassium, iodine, sodium, copper and manganese

He's been responding SO well since we've switched to the "Real" stuff!!!  Bagley Honey Farms has the best Raw Honey 801-489-4820 ...and for the mom who needs "a pick me up"...a spoonful of Raw Honey does the trick!

5 comments:

  1. I'm so sorry to hear about the seizures after vaccination. Unfortunately, most vaccines list Seizures as a side effect of receiving the vaccines. I would highly recommend that you report the reaction to the Vaers database: http://vaers.hhs.gov/index

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  2. Hi!
    I am looking for Johns mom...do you know where I can email her?

    I am so glad to hear Cole is doing well after his surgery. It's a beautiful blog, thank you for gearing hope.

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    1. Hey! Yes, I do have her info... If you leave me a new comment w/your email address (your comment won't post unless I publish it...and I won't publish your email address) then I can email u her email :)

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  3. I just love reading your blog, and I love that despite the trials, you always have something uplifting to say... it's a very good example for me so thanks for being the strong person that you are. Hope you had a Merry Christmas and lots of great progress in 2013! ~Chayla

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  4. Dawson has sensory issues too and they are always changing. Currently, he wakes up first thing in the morning, crying for shoes. He can't sleep if a blanket touches his toes. Getting him to wear pants now is a HUGE huge daily battle, and even after they are on he cries and cries for them to be off. Go anywhere with overhead music (like a grocery store) and he becomes a different guy, massive tantrums etc. Sigh.. I feel like every time we find a trick that works, his sensory stuff changes and we start over. Does Cole's sensory stuff stay the same or does it change?

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