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9.23.2012

SENSORY DISORDER.

Daddy cut his hair and Cole could NOT stop rubbing it...he seriously rubbed his hair for 3 hours straight...that's what you call "Sensory Disorder". He is infatuated with textures...hence his blanky, Daddy's hair & the Car Seat fabric. But, can't stand to wear his shoes for more then 2 minutes at a time. From the beginning of June to September, Cole has "worn" his shoes a total of 2 hours. We just keep putting them back on and so do his teachers, but it's a battle ALL DAY LONG. His therapist said we NEED to keep putting them back on right after he kicks them off, or he will never be able to "stand" wearing shoes. It literally FREAKS him out to wear his right shoe...his left, he can handle for longer periods. 

For a week straight he rubbed daddy's hair till it grew a bit!
 
See how happy it makes him!
 
 ...as for mommy, she gets attacked...these are my battle wounds & they are everywhere.  Luckily winter is coming so I can "protect" my arms.  Cole got daddy's face pretty good...everyone asked what happened & we would say "Cole Freddy-kurgered his face". 

He decided to be sweet & give me a "Five", before attacking me again.

9.13.2012

DRINKING OUT OF A CUP!

Look who learned how to drink out of a cup!!! It's been a 6 month process of getting him to take a sip, hold the cup, not throw the cup, give the cup BACK to us & tip the cup up to get a drink, but he finally did it!!! I feel VERY blessed & I didn't know if I would ever witness this, but it's another "triumph" for Cole. ...Thanks to Debbie (Cole's baby sitter) who has helped him; she is an amazing, persistent and patient woman! it's so cute, it brings a tear to my eye EVERY TIME!

9.09.2012

ONE YEAR POST OP.

Last week we celebrated Cole's one year anniversary of his surgery. Ya, I am still superstitious...so if I don't post anything "bad" then you'll have a good idea of how Cole is doing ;) I can't believe it's been one year since his surgery, I remember the day of his surgery and the MANY MANY weeks after wondering what it would be like when we finally hit the one year mark. We are INCREDIBLY happy with the results and how far Cole has come. I am not going to lie (because as a parent, you ALWAYS want just "a little more" for your child) and I was hopping maybe he would be talking. I know, that's silly of me to be thinking...but like I said, you always "want more". If Cole DID NOT have Infantile Spasms/West Syndrome (which is a seizure type that causes children to become Mentally Handicapped) and *IF* he ONLY had any other seizure, then the Infantile Spasms he would most likely be starting to talk and making leaps and bounds. Since he did have Infantile Spasms, He *IS* making leaps and bounds. Infantile Spasms have a very poor prognosis even if you stop the seizures...most of the children who had/have them can't even hold their heads up, walk or sit up. So, for Cole...he is making HIS goals. I have so much gratitude for the Lord and I feel like my family has been incredibly blessed IN EVERY WAY. He ALWAYS ALWAYS ALWAYS answers my prayers and with out Cole and this crazy life that we've been blessed with, I wouldn't be the person I am today. I know what is important and I know where my priorities need to be. I love the Savior, I love my family and I love my life even though it is SO HARD MOST DAYS EVERY DAY!  You know that saying "God doesn't give you what you can handle, but helps you get through what you've been given"....it's true, he KNOWS me, he KNOWS Cole and he KNOWS my husband.  When we ask for help, he is there to help us...but we have to ask for it!  The power of prayer is an AMAZING gift from the Lord, so if you need help/comfort/love etc. just ask ;)   Anyways, here's what this little guy has  been up to:

This little boy has a new found *love* for blankets, they calm him down...yay for mommy & daddy that we found something to comfort him:

First time seeing (or rather "noticing") a puddle...he's trying to figure out what it is:
 

Figured out it's water!!!  ...he LOVES water:
 
drum roll......
he learned to take "bites of food"...instead of us ripping pieces off for him and putting it in his mouth.  The simple pleasures of life NEVER go UN-noticed around our house!  ...he also learned to take sips of water from a regular cup (with assistance).

Learned to turn off the lights.  It's SO cute, he gets on his tippy toes, turns off the light, runs away and laughs.