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6.26.2012

COLE'S STORY VIDEO.

UPDATE ON COLE 1st:
I am EXTREMELY superstitious right now....but everyone has been so sweet to ask about Cole & I haven't said much...but, the only thing I'm going to say is that the past week....the Lord has been answering our prayers....please keep praying for him.  We don't say the "S's" word in our home and when my husband & I ask each other how Cole is doing...that is ALL we say...we don't go into ANY details because...well we are SUPERSTITIOUS :) Cole is having a grand time trashing our house & throwing EVERYTHING EVERYWHERE and we wouldn't have it any other way (so I apologize if you drop in & my house & looks like a tornado hit....because the Cole Tornado did!)

 I've had the intentions of making a video of Cole's Story for a long time now, and I finally got around to doing it.  I hope you enjoy it!


6.17.2012

ASKING FOR FOOD.

First things First...an UP DATE ON COLE:
It's been 3 weeks since we took Cole off Lamictal, so it should all be out of his system...but  we are still praying for the S's to stop.  We've seen about 2-3/day :(  Please keep praying for him, we don't know what else to do right now.  We just bought our tickets to Cleveland for August ($1,700 not as expensive as the first tickets we purchased thank goodness!)...he will have a 24/hr EEG so we can see where the S's are coming from and what the "pattern" is so we can treat them accordingly.  And he will have a Neuro-phyc test NOT EXCITED for this AT ALL!  It's testing for 9 hrs...don't ask me how they are going to do this with him...cuz I have a feeling they will cut it short in the 1st hour....I already know Cole will FREAK OUT!!!!  I don't think I could even handle on of those neuro-phyc tests...they are crazy brain tests!

On to "asking for food":
Cole's teachers worked SO HARD this whole year to get Cole to use the "Big Mack Button".  It's a button you can record, the press....and in Cole's case...we record "More food please".   Cole has done GREAT using the button.  They let us check one out from the school to use at home, but now that school is out, we had to give it back.  These are EXPENSIVE!  At $120 (the cheapest I've found, including the price that we can buy it from the School District) it is pricey for a button.  Here is an alternative at a better price:

Talk Blocks (set of 5 for $57!!!)
http://www.amazon.com/Learning-Resources-Talk-Block-Set/dp/B004NBIUCC

On the Go/Magnetic ones ($13/each)
http://www.amazon.com/Go-Talk-Button-Model-566773/dp/B002BUR8GQ


P.S. for ALL of those amazing dad's out there, Happy Father's Day :)

6.10.2012

COLE'S 1ST BIRTHDAY.

I just realized that I don't have Cole's 1st Birthday Party on his blog...so here they are! 
I did the "Tickle Monster" Theme....from the book
"Tickle Monster"....it's such a CUTE book and Cole loved it...so that's what we did.

 The Party:
 The PERFECT cake my sister made!
  My sister who made the cake.  ...ya, she's amazing!
The Banner:
(i know...kinda ghetto compared to the ones i now make!)
Our Little Family:
The Party Hat:
(I made for Cole, he ended up eating it!)
...see
Best Part...his *FISRT* cake.
good thing he ate so much since he went on the Ketogeinc diet for his seizures 3 months later and couldn't eat his 2nd Birthday cake :(
his cute little feet in the cake:
 He smashed this cake so fast that we didn't get a picture of it!