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If you would like to contact me, leave a comment at the bottom of the last post. I moderate all comments before they are posted, so if it has your email I won't publish it.
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3.31.2012

"SELF FEEDING" UPDATE.

(7 months post op)
After a lot of frustrating months of teaching Cole to "Self Feed", we have succeeded! Well, *one* part of "Self Feeding" anyways. He will finally take the spoon from our hand and put it into his mouth & give the spoon back.
Next on the list:
-Scoop the food up his self.
-Drink out of a cup with assistance. 
-Bite pieces of sting cheese off.
(right now, he will only eat bite sized pieces of food)
-Take cereal out of a bag/bowl. 
(he hasn't learned that he can take just "one piece",  instead he takes handfuls and can't put it into his mouth which creates  "melt down central",  he punches his head & freaks out!)

These simple tasks that most older babies can do are EXTREMELY hard for Cole.  I can't just hand him a piece of cheese or a cracker and let him feed it to his self, we have to help him eat EVERYTHING.  These tasks would make our lives easier.

Here is a New video of Cole Self feeding:
(turn off music at bottom of blog)

 If you didn't watch his first video of "Self Feeding"
(5 months post op)...here it is:

3.23.2012

COLE LEARNS HOW TO GO THROUGH TUNNEL.

(7 months post op) Uncle Aaron & Aunt Jess brought Cole a tent & tunnel. I wanted to get Cole a tunnel because he was starting to "duck" his head when things were in his way...but I thought he might freak out if I tried to put him in one. Well, it took about 2 days for him to do it...and now he's a pro!!! This is a HUGE accomplishment for Cole and crawling is great for him. Thank you SO much for the toy!!! (turn the music off at the bottom of the blog 1st)

3.15.2012

LAMICTAL.

Cole started his new medication last week.  It will take 6 weeks to get to the therapeutic dose...if you go "up" to fast on the dose, a child can get a life threatening rash...if he gets the rash, he will need to stop taking it immediate & of course go to the ER.  After we get to the therapeutic dose & he is tolerating it well...THEN WE CAN START WEANING THE KEPPRA (which will take about 3 weeks to wean).  We are looking at about 9 weeks (plus the dr said the Keppra won't be out of his system for 2 weeks after stopping it)...so it will be about the end of May until we get relief from the craziness & frustration of the awful "Keppra Rage".  I am REALLY praying that Cole will tolerate the new medication & that it will be a good transition...I am praying even more that once the Keppra is removed, that he will be nicer!!! ...and hopefully this will be his last seizure med...which we can't start weaning until the end of 2013 (if all is well with the "S's" at bay). 

3.02.2012

COLE IN THE NEWS.

A few months back Andrew, the Executive Producer of Medical News contacted us to see if he could include Cole in one of his Epilepsy Surgery stories.  A bunch of news stations have been airing the story around the U.S. You can watch it here:
"Pulling the Plug on Children's Seizure's"

I have to say...I didn't prepare my self for what I was going to watch...I haven't seen video's of Cole seizing since before his surgery.  I've been superstitious about watching them & NEVER EVER want to see my baby having a seizure again.  I felt kinda sick after watching it...but duhhh!!!  I knew they were going to be on there...but was so excited to watch the story that I didn't prepare my self.  I think Andrew did a great job with the story & I am so glad Aleah is doing great after surgery...I *heart* successful stories!!!