HAPPY VALENTINES DAY!
My darling & talented friend Tiffany made these adorable Valentines for Cole & I L.O.V.E. them!
Cole is doing good and we are VERY anxious to go to Cleveland in 2 weeks. This will be his *first* EEG & checkup since his surgery. We are praying that his EEG will be accurate & DEEPLY praying that his EEG is beginning to normalize & no "S" activity. Can you believe it's almost been 6 months since Cole's surgery. You would think that things would be "easier" since his surgery...but in a way, it hasn't been. My anxiety level has been through the roof, watching and waiting for the "horrible beast" to strike at any moment. We have heard a lot of stories where kids have been seizure free for 5 years & all of a sudden they came back (hence why they don't declare someone seizure free until 6 years of no activity). It makes me SO sick to my stomach. I hate being afraid. I don't want to live in fear, but oh, if you had the experience with a catastrophic childhood epilepsy...you would know how much they destroy the "bright future" of amazing little children. Yes, they still have a bright future a head of them, but it's on a whole new level. A "new level" that I secretly wish I never had to experience. It's been hard having our first child & see his life change over night. I have no idea what I am doing...but just taking it one day at a time, not looking to far a head & just letting the Lord hold my hand every step of the way. But oh how much I love this little boy, no matter what "level" we have to face together. He is so sweet, his innocents and unconditional love is so PURE & GENTLE. Happy Valentines Day!