It's sad I haven't even had the time or patience to post any of our Christmas pictures. Instead, I've been dealing with a crazed and psychotic toddler...thanks to his medication. It's only gotten worse...and he's been spending most of his time in his crib! I talked to his neurologist and they want to wean him from Keppra (I love how understanding and compassionate they are by the way! They felt horrible because they know what this drug does to adults & children. A lot of teens/adults become suicidal on this drug, so I can only imagine how Cole is feeling). BUT, they want to add another medication (Trileptal/Oxcarbazepine). I am not a big fan of putting him on another medication...in fear that he might start seizing again. It TOTALLY freaks me out. I don't know what I would do if he started seizing again because we put him on another med. But, I also can't let him feel the way he is on Keppra. I thought our days of dealing with medications were behind us :( I HATE THIS! ...however, today he has been 50% better with his anger...I gave him B6 & vitamin D this morning and I wonder if that what helped. They say adding B6 with Keppra helps, although it's never proved to work for Cole when we tried it last. However, I always supplemented him with Vitamin D everyday...until I went back to work & that is about the time that he started becoming angry. So, I am going to see if Vitamin D does the trick (please pray that it does!!!). I am also getting his Vitamin levels drawn to see what he is low in.
OK, now I've got a few questions...
1. have you tried Trileptal with your child: if so, can you tell me how your experience was?
2. if you have special needs children: what vitamins do you think work the best (I was looking into Kirkman- SuperNuThera, it super expensive...but everything for Cole seems to be & if it works for better behavior and better cognitive results I will use it...but wanted to see if anyone knew anything about it or other vitamins you recommend.
3. I am going to get his blood drawn for: Vitamin levels and allergies lgE & lgG....is there anything else I should check for or advise in this area?