CONTACT ME:

If you would like to contact me, leave a comment at the bottom of the last post. I moderate all comments before they are posted, so if it has your email I won't publish it.
..........................................................................................
ALL PHOTOS ARE SUBJECT TO COPY RIGHT. DO NOT "PIN", SAVE, OR USE ANY PHOTOS WITH OUT PERMISSION, THANK YOU!

11.16.2011

3 MONTH POST OP.

Wow! It's been 3 months since Cole's surgery.  The 10 days he was in the hospital, really seemed like we wouldn't be able to leave...every day seemed to get worse and worse.  It was an adjustment, but AMAZINGLY worth it!   
Here's a run down of the pre-op & post-op of changes in Cole:
  • Cole no logger needs to wear his helmet (because we haven't seen any "S"s!).
  • instead of staring at the ceiling, Cole actually looks at us! 
  • figured out how to crawl (he didn't crawl much, so he's going back to learning at a 10 month old level)
  • he doesn't "hand wring" or do brain simulations like he used to.
  • starting to babble.
  • plays with toys a little more.
  • we don't have to take his stroller EVERYWHERE anymore! (we used to have to take it everywhere, even to church!)  His brain couldn't process walking from the car to the front door...it was too far for him.  Now, he always wants down & loves to run, run run! 
  • he gets on the couch ALL BY HIMSELF!
  • is super happy now & doesn't seem to cry like he used to.
  • holds our hand.
  • pays attention to the dog.
  • rubs our arms.
  • responds when his name is called.
  • climbs the stairs.
  • starting to give "high five's"
  • he gets "scared" now.
  • can tolerate loud noises (not always, but MUCH more then he used to!)

6 comments:

  1. Amazing! I can't believe it's been 3 months already! Cole is doing great and is so handsome:) You guys have been through so much and weathered the storm like pros! Thanks for sharing your story with others.

    ReplyDelete
  2. What GREAT news to hear!!! Go Cole!! you are such an amazing little boy!

    ReplyDelete
  3. I am so happy to hear the wonderful news! It was REALLY great seeing him today! I literally had the, "Wait, is THAT Cole?" moment - what a huge difference!

    ReplyDelete
  4. That is SO AMAZING! What a miracle!

    ReplyDelete
  5. YAY! Oh i love hearing all these things, seriously it makes my day!

    ReplyDelete
  6. Sarah, I am still so happy that I met you yesterday. It really meant a lot to me. I just watched that video on your side bar of cole's cluster of seizures. Those head drops are very very similar to Dawson's. He stiffens at first, falls over and stays still for about 15 seconds, then starts the twitching part, another 15 or so seconds. After that comes the head drops, which are from the muscles in the neck like Cole's. If he's standing, he'll fall over just like in youR video. It just aches to watch doesn't it?

    I am so happy your sweet little guy is doing so well. What a miracle. Hope to talk to you soon. Thanks again for stopping me :)

    ReplyDelete