CONTACT ME:

If you would like to contact me, leave a comment at the bottom of the last post. I moderate all comments before they are posted, so if it has your email I won't publish it.
..........................................................................................
ALL PHOTOS ARE SUBJECT TO COPY RIGHT. DO NOT "PIN", SAVE, OR USE ANY PHOTOS WITH OUT PERMISSION, THANK YOU!

9.01.2011

DAY 1 (POST OP).

Cole's surgery went beautifully. He will or has already lost his peripheral vision on the right side because of the Left Occipital removal. The surgeon said when he got in there & put the electrodes on his brain...the activity in his Temporal & Occipital were VERY abnormal and felt abnormal. There was generalized seizure activity in the Left Frontal & Parietal...but once he detached the "abnormal tissue" (Left Temporal & Occipital...he actually removed a small piece of his parietal lobe as well) the activity in the Frontal & Parietal became normalized. This is VERY good news. His brain has NEVER had a break for 2 years and today he has! Now is the waiting game...we wait & watch. Dr. Bingaman said if Cole has a few seizures for 1 week it is ok, because it happens. But, if it is past a week...it is not so good and we would do more testing & meds. The amount of support has been amazing from friends, family & strangers. We are so grateful for the phone calls, emails, texts etc. We had 1,000+ hits on our blog today...thank you for caring about Cole! Please keep praying Cole will heal and be seizure free. I am amazed by how strong Cole is. I really can't believe what he has been through at such a young age. He is my hero, I look up to him so much and he always amazes me!
HERE ARE SOME PICS POST SURGERY:

the 1st picture reminds me of when he was first born for some reason.



Cole will be in the ICU for a 3 days and then be transferred to the monitoring unit.  His eye's a swollen and will get more swollen the next 24-48 hours.  He is looking a lot to the Left side, so we've been using his "baby Einstein toy" to get him to look forward.  He has a bit of a fever, he got Tylenol. His voice is still raspy from the breathing tube.
By the way...we LOVE LOVE LOVE Dr. Bingaman!!!! This man can probably do brain surgery with his eye's closed. He is A-MAZING!!! He came to talk to us right after surgery and asked how we were doing and if we needed anything...I was thinking "man, your the one who had a long day in the OR, I should be asking you". He didn't look tired or fatigued. I don't know how he does it!!! We LOVE him :)

12 comments:

  1. So glad everything has gone so well! Wish you all the best!

    ReplyDelete
  2. Been thinking about you all day. We love you guys! Always in our thoughts. Love, Brandon and Kami :)

    ReplyDelete
  3. Thanks for the update:) So glad to hear that Cole is doing well. So glad that the doctors, nurses and staff are taking great care of you all. Stay strong!

    ReplyDelete
  4. cole youre doing awesome!!!!!!
    you are in our thoughts and prayers

    ReplyDelete
  5. So glad to hear everything went smooth for you guys!!! Hope everything continues that way and you can get back home and start a normal routine :) Love you!

    ReplyDelete
  6. Sarah and Adam,

    You two are so amazing! It is such a hard thing to even see your child go through small hurts and pains in their life and you have dealt with so much in Cole's short life. I can't believe how strong you are! We just love you guys so much. You are always in our thoughts and prayers!

    ReplyDelete
  7. You guys are amazing, I do not know how you guys do it. We are keeping up with your blog. The kids now know and pray their cousin gets better. Just amazing!

    ReplyDelete
  8. I am crying happy tears for you all. This is exactly what happened with John and I am hopeful that his future is just as bright. Don't be too devastated if you see some strange seizure-like activity in the next few weeks. We continued to see funny things for almost six weeks after the surgery, as we figured out his medication levels and as his brain healed. It sounds like no matter what, Cole is going to have a dramatically improved quality of life from this. You are wonderful parents!!! -Ashley

    ReplyDelete
  9. Oh by the way, I think 900 of those 1000 hits on your blog yesterday were from me... :) -Ashley

    ReplyDelete
  10. Such little steps to get here and now they are taking off by leaps and bounds. Keep fighting! Love for you all! Love Bev and Rich

    ReplyDelete
  11. We have been thinking about your family so much the past couple days, and have been praying for little Cole! Sounds like so far everything is going perfectly, we will pray that everything will keep falling into place the way it is supposed to! I am so happy he is going to have a chance to begin developing and learning the way he little body has been wanting to all along! Lots of love!

    ReplyDelete
  12. So glad that things are going well. Sorry that you and Cole have to go through all of this but grateful for modern medicine. You are in our thoughts and prayers. Love, Don & Vivian

    ReplyDelete