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7.25.2011

UPPING THE MEDS.

I talked to the Neurologist today...we will up Vigabatrin by 250mg and will follow up with them this Friday.  If Cole's seizures increase, they will start weaning the Vigabatrin (takes about 2 weeks).  If they decrease or see no change in seizures, then they will up it by another 250mg.   I let the dr know he has about 100-150 seizures a day now (more then before the meds), he falls backward while having a seizure but the absent seizures have decreased and his cognitive has been amazing!!!   The month of July he has learned to:
-STAND UP WITH OUT HANDS
-CLAPPING MORE
-GOING UP THE STAIRS (NO HANDS OR HOLDS ONTO THE WALL)
-PLAYING/AWARE OF THE T.V.
-PULLING STUFF OUT OF THE SHELFS
-BENDING DOWN TO GET THINGS FROM DIFFERENT PLACES
-LAYING DOWN ON THE GROUND GRACEFULLY
-CHASING & TRYING TO KICK THE DOG
-MOVING HIS HAND IN A "HI" MOTION
-SWINGING THE DOOR OPEN TO THE STAIRS
-CLIMBING ON EVERYTHING!!!
It has been AMAZING watching him learn new things!!!  I can't even tell you the relief and happiness that we find in watching Cole learn new things.  He is an amazing little boy with such an innocence about him, I can see it in his face and the way he looks at us.  He is so trusting and we love him so much!  On the "not" so good note,  he's been waking up at night and screaming for an hour.  He seems to go through long periods of waking every few months.  We are pretty sure the seizures are waking him.

1 comment:

  1. Yay on the progression, I am SO happy for you guys! I bet it's like Christmas every time he does something new :) That's frustrating about the meds, but at least there has been some positivity! LOVE YOU

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