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4.28.2011

DATE FOR SURGERY SCHEDULED.

We FINALLY have the date scheduled for Cole's surgery!  We will fly out June 16th, he will be admitted for an overnight EEG the 17th.  On the 20th Cole will have a PETscan, more genetic testing (hopefully they will be able to find the mutated gene so that we will have an idea of what we are dealing with our kids in the future children). He will get sedated for an invasive opthomology check-up (because they will be removing the Left side of his occipital lobe, which is where your vision function is).  The 21st we will meet with the surgical team, surgeon & neurologist. The 22nd Cole will have surgery...his Left Temporal & Occipital Lobes will be removed.

We were originally shooting for May, which we could have had the surgery done on May 25th, but the surgeon is going on vacation the next day...and he doesn't want to leave Cole in case something happens and he needs to do another surgery on him.  So, June it is!  We are SO grateful to each of you...for your love and support, for thinking of us, praying for us & crying with us.  The love we have felt from family, friends and strangers has been so overwhelming and heartfelt!  THANK YOU for everything...the emails, texts & phone calls...though we haven't been able to respond to each of you, they have not gone un-noticed.  We truly have felt everyone of your prayers...Thank you for having faith in the Lord, our family and in miracles. We LOVE YOU!!!
xoxo, Cole's Parents

5 comments:

  1. SO excited for you guys, I'm so glad you guys have a date set...aaahhh
    See you this weekend :) LOVE YOU

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  2. So glad you have a date and know what to expect the next couple of months. Waiting and not knowing is the worst part! Best of luck to you. Our prayers and thought are with you.

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  3. Hope this means A will have less difficulty in flying out with you for the surgery portion! Love and hugs! C

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  4. Hope all goes well in June. I will keep your family in our prayers What a strong and beautiful family you have.

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  5. For what it's worth ... I have a friend whose child had the same surgery and later had a brain test to determine Dravet's syndrom (a form of epilepsy). She stated that it's rare and the blood test is costly so it is not typically ran. If they had the test first, they would not have had the surgery. ... May not apply to you, just passing along the info. Prayers for your little one!!

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