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6.28.2010

EPILEPTIC ENCEPHALOPATHY

We had an apt with Cole's Neuro last friday. I talked to her about Cole's severe developemental delays...she came back with Epileptic Encephalopathy. We are still learning about it...but from what we read...it is a rare disorder caused by Seizures in young children that severly delay their developement. The Neuro said, Children with this disorder rarely "catch up" to their age group developementally and will always be behind.

Adam & I kind of saw it coming because he is about full year behind...but we also had high hopes that if the seizures stopped, he could possibly catch up. Though...Miracles do happen...I am not going to disapoint my self in thinking that he might. I think we have a longer road ahead of us then we think we do...but, it all works out in the end...right!?!

Cole is getting an EEG done on June 30th. This will be the 1st one since he has started the diet...so it will be interesting to see how the seizures have changed.

1 comment:

  1. Sarah, Your family is in my prayers. Hoping all goes as to be expected on June 30. Manoah has had so many EEG's that I have lost count. Hugs from afar!

    question: With this new diagnosis, are you leaning towards a "medication" or is the Keto Diet still going to continue? Or a combo of BOTH? Just curious.

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