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2.06.2010

COLE'S STORY

Cole was born in 2008. He was a happy & healthy little baby. One day (when he was 10 months old) I noticed for a split second that his eyes rolled back in his head. Not thinking much of it & thinking he was tired...he fell fast asleep. A few hours later he did the same thing...it was around nap time...again...didn't think much of it. The next day Cole was in his jumper and his head SLAMMED into the tray as his eyes rolled back...the next few days the "head drops & eyes rolling back" escaladed into HUNDREDS a day. He was sleeping for hours on end because of how much energy it took on his little body. FREAKING OUT...we took him to the drs asap. They sent us to the Pediatric Neurologist where they did an EEG. They diagnosed him with "A-tonic Drop Seizures" as well as "Stare Seizures". We set out for information on EVERYTHING. We decided to look at ALL of our options. We tried the B6 Vitamin Therapy & Fish Oil Therepy. It was working...not all the way like we had hoped...but it decreased the seizures as well as the harshness of them. He was no longer sleeping for hours after having 30 of them in a row. A few months passed & we felt like he platued. Back to the Nero's we went, and decided since he did so well we would skip the medications and go stright to the "last resort" as some call it...The Ketogenic Diet. (Which MUST be started in the hospital under a diatian & dr care...and to NEVER to be started on your own). We did have a hard time getting the insurance to cover it since he haddn't had medications before...but, with the help of MANY prayers...they approved it! Cole has been a Keto Kid since January 2010. And this is where our "New Journey" begins!

Cole has Global Delays from the seizures...before the seizures he used to point & say "mama & dada"...the normal 10 month old stuff. He is 16 months...dosn't talk, rarely babals, dosn't point and can not use his right side as well as his left (example: can't feed himself w/his right hand, etc.)...but, has started walking at 15 months which we were SO EXCITED & PROUD of him!!! He is a little trooper. Hopefully with the diet we can get his seizures to stop so he can continue to develope mentally & physically. He is also in Kid's on the Move (an early intervention program)...they help him with his delays and are AWESOME!!!!

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